Chapter One


“Writing is the way I process the world. When I was given the opportunity to write this book, whatever God is up there said, You got your dream. I said, Actually, I was hoping for a lighter topic. And God was like, Ha ha! You thought you got to choose.”
-Chanel Miller

I believe there is a God--one God--“up there”. And I don’t believe He finds our tragedies funny. Our suffering breaks His heart. But in Know My Name, Chanel Miller captures our misguided sense of control over our lives, a reality that we all have had to come to terms with over the past several weeks.

Almost six years ago, my own illusion of control over my life was shattered when my dad committed suicide one September afternoon. God has brought immeasurable healing to me and my family since then. I have walked through fire and not been burned (Isaiah 43:2). And for the past few years, I have opted to believe that the worst had happened to me. My storm had passed, and the rest of my life would be pretty smooth sailing.

But the truth is, we are all just "stumbling around in the debris of the dreams we thought were entitled to and the plans we didn't realize we had made" (Kate Bowler).

Smooth sailing during a global pandemic

COVID-19 gave each of us the gift of slowness, the word I ironically chose as my “word for 2020” back in January. Ha ha, I thought I got to choose.

With the compulsory slowness of COVID came a realization: I had time to start listening to my body. And not only did I have time to start listening, I had time to do something--I scheduled appointments with specialists, and I finally had to acknowledge that after weeks of facial numbness, hearing loss, vision problems, vertigo, headaches, and many broken plates and spilled drinks (sorry friends), it was time to seek some answers.

Throughout all of these symptoms, I was never too concerned for my health. I’m 24, I drive slow, I drink approximately three glasses of wine a year. I stayed far away from WebMD, and my friends and I quipped about my "tumor" for weeks. I hoped if I kept making my symptoms a joke, then they couldn't be a reality. I wanted to believe that God distributed pain relatively equitably among the world, and I had already been awarded my share. I must have a Get Out of Pain Free card.

But that’s just it: God is not measuring our portion of pain. God is not causing us to suffer, but He sits with us while we do.

Practicing slowness with Captain Marvel the Cat (aka Carol Danvers)

So when I got a call at the end of April that an MRI indeed found a large, non cancerous, tumor in my head that would require brain surgery, I had to laugh a little. I had created a security blanket for myself with my human reasoning that “lightning doesn’t strike twice”. But human reasoning will never give us God’s perspective. What I do know is that God’s love for me has never and will never change.

To my beloved seventh graders: I want you to know that I have decided I am Katniss Everdeen. For years, I have felt connected to Katniss. She is the oldest of two sisters, and she takes care of her family after her dad's sudden death. She is a warrior determined to win. And I am determined to win this, because I know that the odds God is always in our favor.

My diagnosis is not a death sentence. Vestibular Schwannoma is a treatable, non cancerous tumor. But that doesn’t make me any more eager to undergo brain surgery; I'm pretty scared.

But as I walk into this unknown, I know that God is already there. "There was another in the fire" six years ago, and "there is another in the fire now" (Hillsong United).

And if you’re reading this, I would love for you to be there, too, in prayer. Already, I have never felt so loved or so covered in prayer. In Kate Bowler's "Everything Happens for a Reason and Other Lies I've Loved", she shares that after her cancer diagnosis, she experienced "love, so much love, love I find hard to explain". And that is how I feel. And my prayer is that we may each experience God's love for us through this. Because He is ALWAYS working; sometimes we just forget to look.

My #3 Man Andy (Jesus being #1, Clint #2)
 "We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body. For we who are alive are always being given over to death for Jesus’ sake, so that his life may also be revealed in our mortal body. So then, death is at work in us, but life is at work in you." 2 Corinthians 4: 8-12

Comments

  1. Beautiful and powerful. Through my tears, I hear a strong and resounding “if God is for us, who can be against us?” Thank you for sharing part of your journey. “This is my story, this is my song. Praising my savior all the day long..” God is using you. Praying for you, Avery ❤️����

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  2. Avery, you are so strong in your faith, and so loved by so many. You know "Where da Gold at!" You also know we are surrounding You and Clint, your families, and your doctors with prayer. "There is Another in the Fire!" We Love You girl!

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    1. Total newbie at this blogging, thought I signed in; Love Marc.

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  3. Wow. Your strength is astounding. Your faith is compelling. The Pisgah family loves you and is praying for you. Indeed, God does not cause this suffering, but he is with us all along the way. God bless you.

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  4. So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 41:10.  GOD BLESS YOU!

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  5. I will miss you so much. I am so glad we have the Lord on our side, and he will be here with you through your surgery and recovery. I cannot wait to see you again after this is over!
    With love,
    Kathryn

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  6. Mrs. Garn,
    When I joined yearbook I did not know all the work that is put into the yearbook. It's amazing! This year I have enjoyed yearbook because the environment felt like a family. You are always so funny and I have enjoyed listening to Taylor Swift in class. You are the light in the darkness and will over come you obstacles. Your optimism and humor is inspiring and I can't wait for yearbook with you next year!
    Stay Strong!
    Caroline Overs

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  7. Avery, I've thought of you several times over the past couple years and just didn't pick up the phone to check on how things were going. I'm so glad you have found a place to make your mark, as I knew from the moment i met you that you had a deep and true faith. I'm praying for you to have a successful surgery and a speedy recovery. I was shocked to read about your diagnosis. I miss you, my friend, and hope that we will be able to see each other on the other side of your recovery. I would love to catch up. Let me know how I can help!

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  8. Avery, I too wept as I read your poignant words. Praying that God will cover you with His peace, strength and love in a powerful way. Amy Patterson

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  9. I think it's so cool how God has blessed you with the gift of writing. I enjoyed reading your story. Thank you for sharing your story and inspiring others. May God continue to bless you and your family during this journey. Praying for the doctors and medical team and that they feel God's presence in the operating room.

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  10. You are so loved, and we will all be with you during your surgery. Thinking of you and holding your hand.

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  11. The girl who lights up a room with her presence ...May God shine His light to guide your doctors and nurses today. Praying for you and your speedy recovery. Sending you and your family BIG hugs!!...Love, The Egan's

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